The Megan Hayward Fund

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Status Updates

       

11 March 1999
12:24 AM EST

Megan returned to Hasbro Childrens Hospital on Monday 8 March, and was met by all of the familiar faces of nurses, doctors, staff and technicians who have grown to know Megan so well during the past year. Sheís in the "red pod" this time (wards are called "pods"), although staff members in other color "pods" will pop out of rooms just to say "Hello!" as Megan cruises through the corridors in her wagon.

You know, you have to stop a minute to think about all of the critically ill children the people at Hasbro or Johns Hopkins deal with every day. Their tasks are not easy ones. Here we have been talking about one little girl,.... Megan. But they have to deal with thousands of Megans all the time. When I was talking with Mark and Nancy tonight, one of the things they mentioned was that it was nice to be home (albeit the hospital closest to home) in the care of all the familiar people who were with them when this whole battle began. The comfort and security of being able to deal with such a caring and loving staff (both at Hasbro and Johns Hopkins) has helped to make the past year more bearable.

To all the doctors, nurses, technicians and staff members out there who have helped Megan and other children like Megan,......God Bless You All! Your gentle touch, reassuring words and caring acts reach beyond the healing powers of any medicine.

Well, this is the last chemotherapy treatment Megan will have to endure, itís been a little easier than the last one, although it has still caused her to be rather sick a few times, and her blood and liver counts have fluctuated up and down quite a bit. At least during this treatment, Megan has been less lethargic and more active and playful. Sheís actually spent some time in the playroom between her daily jaunts through the corridors in her wagon.

As usual, Mark and Nancy spend their nights in Meganís room, sleeping on those collapsible chairs,.... kind of reminiscent of the old college dorm days!

Megan did have a CAT scan which indicated that her liver has grown a little, but it has not fully regenerated yet. This will still take some time. After this chemo, Megan will have to be in the clinic twice a week for various other treatments, to measure blood counts, receive anti-rejection therapy as well as other monitoring tests. Even the mildest of fevers will set off all of the alarms and force Megan to return to the hospital. It will be tough to be so afraid of each sneeze, or upset stomach (things which seem to be so common in children as they grow up).

In a previous posting I had mentioned that Meganís sister Kelsey had a fever and was sick. Iím glad to report that she is well, back in school, and doing fine.

I was in a business meeting with Mark the other day, and he has forbidden me to tell you anything about what transpired during that meeting. The "Peace" sign from the 60's, or the Mercedes logo do come to mind though. (Enough said in that department, but I do like to practice "civil disobedience" from time to time).

Megan should be home by the weekend, and hopefully the next phase or life will begin for her. It will be a testing, treatment, checking, re-testing one. But, as we approach the middle of March, maybe some sort of normalcy in the routine of her life can be established. The word "normalcy" in this instance means that maybe Megan will be able to sleep in her own bed for more than a few nights in a row.

**Personal Note**
I know that many people have come to this web site to read messages about Meganís status, see what is happening with various fundraisers, etc. When I first created this site, I never envisioned the outpouring of support it would generate. Everyone has been just "off the wall" supportive! All I knew was that I had a friend and his family who were in dire need of help. From time to time, I probably interject my own personal opinions in the information posted on this site. What I would like everyone to see is that these are real people, they are my friends as well as yours. They are the people who live down the street from you. But the reality is, Megan and her family were faced with something that no family should ever have to endure alone. Many people think it is too difficult in this hectic world of ours to have a real impact on the life of another, someone living down the street from us.

Megan has served as a lesson for all of us. It is easy to help, easy to care, easy to change the destiny of the life of a little girl like Megan. I am one of the guilty ones who has always been "too busy". People have told me to "Stop and smell the roses",.... but I was always too busy to stop. But, I did stop for my friend Mark and his family. I donít know why,.... it just seemed like the "right" thing to do. Now, via this web site, I have learned that there are thousands of people who want to "stop" and "help".

So, if I get personal from time to time, itís probably because "I" have just learned that there are thousands of Megans who need our help, and "I" have just learned that it is easy to help, easy to care, easy to change the destiny of someone in need.

Iím sorry I did not learn this earlier in life. Maybe it took Megan to teach me this. So, if I get personal from time to time, please forgive me. Megan has had a real impact on my life,.... as I am sure she has had on the lives of all of you. Maybe this will help keep the candles burning for all the Megans in the world!

Thank you all for caring!!!!

       


 

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